Participate in research from home
Cohort Science connects research with healthcare and technology to bring studies to patients at home.
Cohort Science runs longitudinal studies within specific disease areas that provide researchers with invaluable data provided by participants from the comfort of their own home, in the form of questionnaires, medical device data and DNA testing.
No physical, cost or time burden of traveling to a research site. Our remote patient support team is available throughout.
Join a community of research enablers & play your part in the development of treatments for future generations.
See how your contribution is making a difference & access insights and opinions of others in similar circumstances.
"It's been 5 years since my diagnosis but this is my first time taking part in Parkinson's research because of my poor mobility. Being able to take part despite having no internet is a big positive and your nurses make this possible."
AccessPD participant
"Participating in research is so important. As individuals we own all this important information about our health that if shared could have a great impact on the lives of others in the future. How else can new treatments be developed if we don’t share this information?"
Study participant
We bring low-burden research to you at home.
01
Step
We present a study to your healthcare provider. If they believe it will benefit you, they’ll reach out to you via SMS, email or letter with more information about signing up.
02
Step
If you decide to take part you’ll be asked to read through our privacy information, and fill out an online healthcare survey. If you need any help, our patient support team is available throughout, and remember you can opt-out at any point.
03
Step
You may also be offered additional studies that aim to gather more detailed information for research studies. You will be able to participate in these opportunities from home, and the choice to participate will be entirely your choice.
Cohort Science develops and manages studies and registries and they are the study sponsor for AccessPD, AccessCMD and AccessILD.
uMed is a clinical study support company who works on behalf of the healthcare providers and study sponsors, including Cohort Science. They will be providing the patient contact and engagement services for Cohort Science registries and sub-studies.
In our Cohort Studies, we will use information from you and your medical records that is relevant to the study. We will only use the information that we need for the study. This information is available to researchers in a de-identified form, meaning patients will not be identifiable from this information. You will not have any rights to the data or any research developed from the data, including copyright. You will not benefit financially from any commercial uses of the data you share as part of the cohort studies. All rights are owned by Cohort Science.
Each patient enrolled in a study will receive quarterly newsletters updating them on the progress of the study. We always welcome feedback from study participants and will provide opportunities for this regularly.
Pharmaceutical and Medical Device companies play a key role in the development of new therapies and will be invited to collaborate with Cohort Science alongside academic and university based researchers.
Whilst every effort will be made to protect your well being and dignity, there can still be risks associated with participating in any medical research. Examples of risks include a data breach of information relating to your health information. Participation in additional research opportunities will always be at your discretion and will require your additional consent. It is important to note that the risks will depend entirely on the specific additional research projects that you participate in, so participation should be carefully considered using all information provided during the invitation.
Participating healthcare institutions and their service providers will be paid administrative costs associated with their involvement in the study.
No, you will not receive any payment. If Cohort Science or its affiliates, research partners or collaborators develop any new product, idea, or service using the data provided, including those that may have commercial value, you will have no rights in any such product, idea, or service, and you will not benefit financially from any of those efforts or product, idea or service.
You can leave the study at any time without giving a reason by contacting the study support team using the contact details below. Any data that has already been contributed prior to your discontinuation will remain in the study database.
If you are based in the US: Contact our study support team at +1 888 454 5580 or you can email:
For AccessPD: patientservices@accesspd.org
For AccessCMD: patientservices@accesscmd.org
For AccessILD: patientservices@accessild.org
If you are based in the UK: Contact our study support team at +44 808 304 9869, or email:
For AccessPD: accesspd@cohort.science
For AccessCMD: accesscmd@cohort.science
For AccessILD: accessild@cohort.science
We are HIPAA compliant
We never sell your data
We’re certified by Cyber Essentials Plus
We’re ISO9001:2015 certified and ISO27001:2013 certified
Compliant and exceeds the requirements of the NHS Digital Data and Security Protection Toolkit (ODS8k677)
